Been a while

So it's been a few weeks - I'm finally down to one visit to clinic every two weeks. But on the flip side, my cret went back up to 148, bah. I did miss a dose on Monday night though, purely forgot, nothing else.

Feeling pretty ok in most ways now, am loving doing Pilates, apart from anything else it's a really good opportunity to think about nothing except what I'm doing at that moment, which I really appreciate. Still get tired a lot and some days the stairs to the train platform are still waaay too long but it is getting less frequent.

Can't wait to dump the prednisolone; I already seem to be losing the moonface a bit, although I'm still way lardier than I would like generally. Working on it slowly though. Have also been abroad for work twice and am going on holiday next week to my place in France for the first time in three years, brilliant!

Watched a few episodes of ER tonight - was rather side-swiped to find my favourite character Carter is a dialysis patient, and the next two episodes see him get really sick and then get a transplant. I know it's ridiculous cos it's only a telly program but I could totally identify with his desire to self-contain the problem and not let on to people what was happening. It was also the first time I've had even the slightest inkling of what it must be like for the people around watching while you get sick, or waiting for the transplant and whether the operation would work and all that. What a nightmare. Made me really sad! But then ER often does that. Was a bit of a shock, I wasn't expecting such a strong reaction. Feel quite guilty for what I must have put people through and that I didn't acknowledge it more at the time. Guess I was a bit busy though.... :)