Keep taking the tablets :)

Have been a bit forgetful lately. Managed to not take any steroids for most of last week, doh. Didn't seem to affect me negatively though... did have to do a mercy dash to a Boots store on the South Coast to get an emergency supply when I realised at the weekend though!

Then this morning got all the way to the office before I remembered I was meant to be at clinic *doh* - hightailed it back over there and was only 15 minutes late. Of course I ended up hanging around for 2 and a half hours *sigh*.

Doctor was very simple and business-like. Said something about everything seeming ok and would I like to come back in a month? I was somewhat perturbed. "What about all the tests I had two weeks ago? What happened with the PET-CT (where I had to take a half day off work and be radioactive)"? She hadn't even clocked that I had one. Gah. The report said there was nothing to see though....

I had a bit of a freakout about the fact that the positioning of the doctors is so inconsistent... she seemed to think all was well, but if it was why bother with all the additional tests?! Is my creatinine ok or not?! (still about 150ish) Will having it at 150 rather than 100 affect the longevity of the kidney? Am I going to get 5, 10, 15 years out of it? Can we do anything to improve the situation? Or is it in fact fine and I should stop fretting?

Ended up talking for 20 minutes.

She's a nice lady, she just got the rough end of my temper. Oops.

Anyway. Upshot is she's going to mention it all in the group meeting tomorrow and I'm going back in two weeks. She also agreed that I could come in and have bloods taken BEFORE my appointment (hurrah) so it's a more useful exercise rather than always working off old data.

I also got told that they're discussing setting it up so you always see the same consultant when you visit. She's personally against it, cos she thinks collaboratively they spot more things. On the other hand, meeting the same doctor is reassuring for many and you get a better sense of a relationship, which will certainly appeal to older people. I'm not sure... I'd just like to not be seen by the ones I don't like much ;)

Going back tomorrow for Peer Support group training. Should be interesting.

Stoopid physical infirmities

So I made it in and out of Glastonbury in one piece. Hurrah!

This ---> is us on the last day, I think. We're still pretty with it considering it's the 6th day of camping in what was mostly very hot weather. Had a great time, except I got utterly pissed off with things at nighttime - unless you're protected by some kind of chemical blanket, it's cold, dull and hard work after about midnight. But the daytimes made up for it. Much hilarity ensued and I enjoyed lots of things, too many to list. The view from the top of the festie above the stone circle still makes it all worthwhile, I could sit there all day.

So that was all lovely and despite some hard times I was dead glad I went. Has taken days to get over it, but that's not surprising; everyone else is equally as jetlagged as me.

Had lots planned for this weekend, if only gentle mate-catching-up type stuff, but it all got ruined by my blood pressure suddenly plummeting on Saturday morning for some reason. I fainted and bashed my head, bleeding all over the place. Doh! I checked my BP afterwards to find it was 95/55, which certainly seems like a good reason for the fainting. Spent the afternoon at hospital getting my head glued back together. Luckily the lovely G was here and came and sat with me and stopped me ranting at people who clearly seemed to be queue jumping at the hospital. Love you babe.

Kinda spoilt my Sunday plans of shopping at Bluewater too, shame really. Gonna call the clinic re: blood pressure tomorrow and figure out what to do. I'd like to cycle to work but I can barely stand up without falling over so don't reckon that's much of a goer. Will try to go to the office though if I can, need to get out of the house apart from anything else!!

Had an Ultrasound on Friday, which seemed fairly pointless, and have a PET CT this Friday. Not sure what to expect. Radioactive dye, apparently. Hopefully I'll glow in the dark afterwards or something. Reckon the surgeon I saw that week was all a bit test happy as he seemed to be signing me up for all sorts. My native kidneys are hurting a bit and the new one twinges too from time to time but I don't know if that could be psycho-somatic or something.

Feels horribly like every time I try to make an effort to get "back to normal" something comes along and twats me in the face to remind me that I'm still ill and should STFU and stop trying to get on with life. Fucked off with it now.