Keep taking the tablets :)

Have been a bit forgetful lately. Managed to not take any steroids for most of last week, doh. Didn't seem to affect me negatively though... did have to do a mercy dash to a Boots store on the South Coast to get an emergency supply when I realised at the weekend though!

Then this morning got all the way to the office before I remembered I was meant to be at clinic *doh* - hightailed it back over there and was only 15 minutes late. Of course I ended up hanging around for 2 and a half hours *sigh*.

Doctor was very simple and business-like. Said something about everything seeming ok and would I like to come back in a month? I was somewhat perturbed. "What about all the tests I had two weeks ago? What happened with the PET-CT (where I had to take a half day off work and be radioactive)"? She hadn't even clocked that I had one. Gah. The report said there was nothing to see though....

I had a bit of a freakout about the fact that the positioning of the doctors is so inconsistent... she seemed to think all was well, but if it was why bother with all the additional tests?! Is my creatinine ok or not?! (still about 150ish) Will having it at 150 rather than 100 affect the longevity of the kidney? Am I going to get 5, 10, 15 years out of it? Can we do anything to improve the situation? Or is it in fact fine and I should stop fretting?

Ended up talking for 20 minutes.

She's a nice lady, she just got the rough end of my temper. Oops.

Anyway. Upshot is she's going to mention it all in the group meeting tomorrow and I'm going back in two weeks. She also agreed that I could come in and have bloods taken BEFORE my appointment (hurrah) so it's a more useful exercise rather than always working off old data.

I also got told that they're discussing setting it up so you always see the same consultant when you visit. She's personally against it, cos she thinks collaboratively they spot more things. On the other hand, meeting the same doctor is reassuring for many and you get a better sense of a relationship, which will certainly appeal to older people. I'm not sure... I'd just like to not be seen by the ones I don't like much ;)

Going back tomorrow for Peer Support group training. Should be interesting.