Tired

Had an appointment with my kidney doctor a couple of weeks ago. Record quick time - I was in and out having had blood tests and HepC vaccination AND seeing the doctor within half an hour, that never happens. So the kidney surgeon asks if I've heard from the liver surgeon at Kings about my liver cyst surgery. "No", I say. He leafs through my notes and says, "oh, we didn't copy you on this one"... turns out, after the original appointment at Kings, the liver surgeon wrote back explaining the options (before/during/after the kidney transplant), saying he preferred to do it after. My kidney surgeon wrote back within days, saying they wanted to press on and do it before the kidney transplant. SIX FUCKING WEEKS passed, and I heard nothing - the only reason I know they even corresponded is cos I got the Guys secretary to send me a copy of the letter.

After a week of unreturned phone calls, I finally emailed the Liver surgeon and his secretary (again) to find out what was going on. I've now got an appointment to discuss it next week, after much hassling, but the surgeons says he won't be able to do it til mid August cos he's away most of July. If they'd pulled their fucking fingers out I could be having the liver surgery now, and have it all over and done with. I realise there's a risk but at least this way I might have had a choice about it....

Because, unfortunately, mid-August is also the time that I'm probably meant to be having my kidney transplant, if my donor is fit to proceed... so I may have to miss out on getting rid of the liver cyst because I need 4-6 weeks to recover before I can go back under the knife again. I can't even fold my arms over it properly without it being painful, I just want it gone. I don't know whether to complain about the frankly awful communications skills from the liver outpatients department. It's not fair that I have to keep chasing these things up!

Then there's the possibility the liver surgery could tip me into needing dialysis, and I don't want to have to do that until we've moved house, so I have the option of installing the hemo equipment at home rather than having to do PD or go to the hospital every day....