Can't think of a clever title :)

So I've had yet another set of tests - everything's ok with calcium and phosphates and all that, which is good, so no dietary restrictions still. EPO and iron infusions have fixed my anaemia and on a day to day basis I actually feel better than I have for ages. Which makes it all the more ironic that we may now have a date for a potential tx. Cret is 339 and eGFR is 14, which is as bad as it has ever been, but no worse really than before I had the liver surgery. I'm SO grateful I forced that through, I was feeling so much worse for the enormous lump in my side. Life has been way more pleasant since then!

J is still waiting on her biopsy result! *sigh* Poor thing, must be agonising to wait for such things when you know there's nothing wrong with you! She's such a star. I can't imagine going through all this shit when I've no need to, I resent it enough as it is! If she can donate, she understandably wants to do it before Christmas so she can recover before her final term at Uni - and that means we're being pencilled in for the first couple of weeks of December!

Only I'm now also being asked if I want to go to Asia on a work trip, which I'd really like to do, but it'll be in November and I don't know if I can be away that close to the surgery - aaaargh. Must call Madeleine and find out what the coup is with that. Heh. At least i'm not letting it stop me living my life, eh?! 

Had a bit of a meltdown about the actual tx and what happens after that, but I think I'm over it - or at least I'm more prepared for it now. Will go see people at the clinic for more info I reckon. Interesting discussion recently at clinic about the fact that pre-emptive transplant patients don't have the same appreciation of the transplant as dialysis patients, as they don't feel the more obvious benefit and aren't used to the more stringent drug regimens, etc. Wonder if anyone has studied this element?

Thought of a new way to explain my situation when people ask me how I'm doing -  I call it the Spinal Tap analogy (only works if you've seen the film, obviously).

You know how they turn it up to 11?

Mostly I feel like I've been turned down to about a 5....