Snow days

Didn't manage to get to clinic on Monday cos of the snow. I completely fail to understand how a bit of snow can shut down the entire bus and tube AND train network. I only live two miles from the City of London, for goodness' sake! Still, did go and try sledging for the first time in my life and actually made a snowman, which was loads of fun!

Down to twice weekly visits now, which is great - Monday and Thursday. Still got some issues to work out, as my cret. isn't as low as I'd like; hovering around 135-140 (eGFR 40) when at its best it was down to 108 (eGFR 50). Doc said if the other little bits we're dealing with settle next week I could be down to one visit a week pretty soon - fantastic! Noticed while they were calling up my blood tests that when they request them and the labels get printed, each one has a price on. That felt kinda weird; also reminded me how very grateful I am that we have the National Health Service!

In the meantime, I have STILL got this mouth ulcer from the intubation during the transplant that will not heal, although new steroids seem to be helping and I'm seeing the dentist again on Monday who will hopefully confirm that it's going away now and doesn't need a biopsy or anything. Also had a chest x-ray yesterday and got yet more antibiotics to try and shift this chesty cough/cold thing that's hanging around. Still so very tired. Hoping that it'll all go soon as I really want to be able to get on and do some exercise, I'm getting proper lardy and restless now.

Of course in comparison to how I felt three months ago this is all just minor niggles! But I just want to get on and feel better now, damnit! Got a lot of work to do yet to get my confidence back as well, physically and mentally - I just don't seem to be sure of anything, sometimes it's like walking round blindfolded. 

Have tentatively set a return to work date for four weeks from now. Hospital reckons three months is a good target for getting back into the swing of my life. Can't believe how quickly the last 8 weeks have passed, while at the same time it feels like forever. Getting back into a routine will certainly be welcome but I fear I've forgotten everything I ever knew about my job! Hopefully I can ease back in gently.